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Mastering Consent: Key insights into general and informed consent for HRO projects

The federal Act on Research involving Human beings, published in 2014, established new requirements for the secondary use of human data and samples, such as the necessity to collect a written consent of patients before using their samples and clinical data for research purposes. This law has strongly promoted the implementation of general consent for research in Swiss hospitals. This session provides an overview of the legal and ethical requirements for the secondary use of data and samples and presents how and when general consent can be used. It also addresses scenarios where a general consent is not available and discusses alternative methods for obtaining participant consent.

After a short presentation, there is plenty of time for you as researchers to ask questions.

This seminar session is part of a lunch seminar series, which offers brief overviews and room for questions on important topics related to observational studies (HRO projects). Find out more about the whole seminar series "Facts and pitfalls for observational studies - how to plan and conduct HRO projects" by following the link below.

About this session

This session provides an overview of the legal and ethical requirements for the secondary use of data and samples, and how and when general consent can be used. It also addresses scenarios where general consent is not available and provides alternative methods for obtaining participant consent.

Find out more about the whole seminar series here: Facts and pitfalls for observational studies - How to plan and conduct HRO projects.

Content and speakers:

Content:

Consent for HRO projects:

  • Data and samples secondary use: Ethical and legal framework
  • General consent 
  • Other consent options for further use projects

Speaker:

  • Dr. sc. Cindy Allenbach, Research consent unit manager, Centre hospitalier universitaire vaudois
Who should attend:

The main focus groups are researchers and study teams with planned, ongoing or completed HRO projects (observational studies), who have questions about the general consent.

When:

Wednesday, 2 October 2024, 12h00 – 13h00

Registration:

This session is hold online as a Zoom meeting.

Please register here.

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