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Sharing of Data from Clinical Research Projects: Guidance from the SCTO’s Clinical Trial Unit Network

Authors: Brigitta Gahl, PhD (1), Alan G Haynes, PhD (1), Constantin Sluka, PhD (2), Elise Dupuis-Lozeron, PhD (3), Francisca Jörger, PhD (4), Renate Schur, MSc (4), Andri Christen, PhD (5), Sven Trelle, MD (1)


Affiliations: (1) Clinical Trial Unit Bern, University of Bern; (2) Department of Clinical Research, University of Basel, University Hospital Basel; (3) Clinical Research Centre, Department of Health and Community Medicine, University of Geneva and Geneva University Hospitals; (4) Clinical Trials Center, University Hospital Zurich; (5) Swiss Clinical Trial Organisation (SCTO), Bern, Switzerland
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October 2021 Guidelines doi: https://www.doi.org/10.54920/SCTO.2021.02

Abstract

Data sharing has become a requirement of many funding bodies and is becoming a scientific standard in many disciplines. In medical research, however, data sharing can conflict with clinicians’ obligation to protect patients’ privacy. Although general recommendations on data sharing already exist for clinical research, they are often not applicable to aspects specific to Switzerland. This guidance document from the SCTO’s CTU Network can fill this gap: it provides practical recommendations for all relevant aspects of data sharing in accordance with legislation in Switzerland. Included in the guidelines are details of aspects to be considered, decision-making criteria, examples, and checklists – all of which aim to support clinical research data sharing in practice.

Imprint

Latest revision

After a public consultation process, the revised version 3 of the guidelines was published in October 2021.

Recommended form of citation

Gahl, Brigitta; Haynes, Alan G; Sluka, Constantin; et al. (2022). Sharing of Data from Clinical
Research Projects Guidance from the SCTO’s CTU Network. Published by the Swiss Clinical Trial Organisation (SCTO). doi: 10.54920/SCTO.2021.02 *

Copyright

This publication is licensed under CC BY-NC 4.0. The content of this publication may be shared and adapted as long as you follow the terms of the license. To view a copy of the license, visit http://creativecommons.org/licenses/by-nc/4.0/. Please attribute this resource to “Swiss Clinical Trial Organisation (Statistics & Methodology Platform)” and link to the following website: www.sctoplatforms.ch.

Contact

To give feedback on this publication or obtain further information, you can contact platforms@scto.ch.

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